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What do you need to know about MND?

What do you need to know about MND?

The options below give basic information about MND, with links to detailed resources for further guidance. Motor neurone disease (MND) affects the nerves called motor neurones in the brain and spinal cord. These nerves tell your muscles what to do. When motor neurones are damaged, it can affect the way your body works.

What is motor neurone disease (MND)?

Motor neurone disease (MND) is a progressive and terminal disease that attacks the motor neurones, or nerves, in the brain and spinal cord. Respiratory muscle weakness occurs eventually in everyone with MND.

How common is dysarthria in people with MND?

Visit our AAC pages for further information about communication support for people with MND. More than 80% of people with MND experience slurred, quiet or complete loss of speech (dysarthria). 25-30% of people with MND have dysarthria as a first or predominant sign in the early stage of the disease.

What are the early warning signs of MND?

For some people the first sign anything was wrong was weakness in the muscles around their throat and mouth, leading to problems with speaking or swallowing (known as bulbar onset MND). A few people noticed breathing problems early on.

What information should be included in an MND patient information?

Information should be oral and written, and may include the following: What MND is. Types and possible causes. Likely symptoms and how they can be managed. How MND may progress. Treatment options. Where the person’s appointments will take place.

Motor Neurone Disease. Motor neurone disease (MND) causes a progressive weakness of many of the muscles in the body. There are various types of MND. This leaflet is mainly about amyotrophic lateral sclerosis (ALS), which is the most common type of MND. Although there is no cure for MND, treatments can help to ease symptoms and disability.

How should we inform healthcare professionals about motor neurone disease (MND)?

1.1.1 Ensure that robust protocols and pathways are in place to: inform healthcare professionals about motor neurone disease (MND) and how it may present inform healthcare professionals in all settings about local referral arrangements ensure continued and integrated care for people with MND across all care settings. [2016]

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